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FAMILY RESOURCES

Map in Grass

Check out our map to see if there's another Liss family near you! If you'd like to be added to our map please email us at lissfoundation@gmail.com! We use this map to connect new families & for organizing our Regional gatherings.

We were able to send out care packages to over 35 Lissencephaly families all over the US during the 2020 COVID-19 pandemic. Thank you to all who donated supplies & cash to help cover costs.

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If you are a Liss family in need of something please feel free to reach out, we are no longer accepting applications but we may have some extra items we could send you.

PROGRAMS FOR FAMILIES

CONDOLENCES PACKAGE

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HOLIDAY CARE PACKAGE & EQUIPMENT GRANTS

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CLOSED

INFORMATIONAL BROCHURES

PACKET OF HOPE

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EQUIPMENT GRANTS

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PARENT/CAREGIVER RETREATS

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MD Moms OPEN NOW

SLEEP SAFE BED GIVEAWAY 2019

CONGRATULATIONS to the Crawley family in Oregon. A huge Thank you to our generous donor and to all who applied for the 2019 sleep safe bed. We hope to do this again in the future!

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Websites & Social Media

Facebook:

Family Support Groups-

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Lissencephaly Network -

https://www.facebook.com/groups/2521975802/

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Lissencephaly - 

https://www.facebook.com/groups/lissencephaly/

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Our Nonprofit fb page

Lissencephaly Foundation Inc -Lissencephaly Nonprofit

https://www.facebook.com/lissencephalyfoundationinc/

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Websites:

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NIH Informational website

https://www.ninds.nih.gov/Disorders/All-Disorders/Lissencephaly-Information-Page

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WebMD Informational website

https://www.webmd.com/brain/what-is-lissencephaly 

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Rare Diseases website

https://rarediseases.org/rare-diseases/lissencephaly/ 

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Lissencephaly specialist - Dr. Dobyns

https://www.seattlechildrens.org/directory/william-b-dobyns/​​​

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Welcome to Holland Poems

These words have helped many Special needs families through the diagnosis process & provided a sense of hope. I hope these will help you also. 

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